I was so excited that Gabriel didn’t have a big seizure in the middle of the night like he had the last 3 nights. Now I find myself wishing he had just had the 1 in the middle of the night instead of the craziness we had today. 🙁
I think we are ready to say that has has offically developed a new kind of seizure….. fan…freaking….tastic ;( He has 2 episodes that fit the description of complex absence seizures. 1 last night and 1 this morning. He also had 1 gran mal, a partial slow drop and a full backwards fall with head slam on hardwood floors drop today.
He has also learned to try and spit out whatever medicine remains in his mouth after we syringe it in him. Seriously….I hate it! We literally have to sit on top of him and force his mouth open just to get it in.
Days like today are hard when we are working so hard to manage the seizures and he still needs medicine and he still needs meals for tomorrow. My mom was able to come down and spend some time with me this afternoon since Chuck has school and or work late everynight this week.
Asking for prayer for strength and answers to get us back to days without seizures.
Oh, honey – I am so sorry this is happening! Little G is the first bead on my rosary when I get to my “kids I pray for” series of beads. I’ll be with some Asbury friends this week and will lift you in prayer when we are together. I can’t even imagine – it was looking so promising a week or so ago and this set-back is just that – a set back! Praying like mad you get your little boy and his pre-school temper back and not in the form of spitting out his medicine. Asking God on my knees tonight to be your comfort and your hope….remember all the positives you’ve learned, the realization this is not a life sentence – right now is just the set-back and God will help you see that there are other plans for you, Chuck and G – plans that involve a hope and future. Take courage, sister, love you much. In His grace and peace, tammie
Thanks Tammie! I was reading this post aloud to Chuck and Gabriel piped in with “let’s pray for the kids”. He folded his hands and we all prayed together. 🙂 One of the many pieces of Grace is the fact that Gabriel has many, many great moments everyday.
Oh, Amy-how awful. :(. Want some company tues/wed/thurs night? Let me know. I’ll bring you some dinner too!!
Thanks for sharing our prayer concern with others! We know God is listening. Yes. I would love to see you….Thursday night would be super if it works for you.